This morning we left the house just before 7 to get to a 9am appointment at Brigham & Women's Hospital in Boston. Thankfully the appointment was ACTUALLY at 9:30 (or at least we think) because we didn't actually get in the building until 8:54 :) Stupid traffic! It should only take about an hour...
We met with Dr. Alexander, Radiation Oncologist, and the nurse on the case, Sheila - who were both great. After some questions and a routine neurological examination, they got down to business.
Dr. Alexander had discussed Charles' case with the tumor board or something like that, and Dr. Golby. The general consensus was that Charles was not a candidate for stereotactic radiosurgery, and that while he could get radiation at BWH, his best options are either A) another craniotomy, this time by Dr. Al-Mefty, or B) Proton Beam radiation at Massachusetts General Hospital. This went along with what I had been thinking after gathering a lot of information. We will be making appointments with each to thoroughly discuss details and options and make the decision from there. Charles really does not want to have to go through surgery again, but if that ends up being the best option, he will. Dr. Alexander seemed to be more optimistic about surgery than Dr. Golby was... which is interesting since Dr. Golby is a neurosurgeon and Dr. Alexander is not! Or rather, he seemed more concerned with the negative aspects of radiation, which I really appreciated. They both have their pros and cons and we don't have enough information now to know what will be the best option for him at this time. We are hoping to get appointments with both Dr. Al-Mefty and Dr. Shih at MGH very soon.
Charles also has an appointment at BWH Monday morning at 9 with Dr. Prasad, a neuro-ophthalmologist.
That's the summary. I will post again later with the details for those who want to know them!
Love,
Sue
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