Surgery Facebook Updates

I've made a lot of facebook updates since the surgery.  I figured I'd post them all here as well.

About pre-op:

Getting up at 4:30 am is just inhumane!
September 1 at 6:54am via mobile

Brigham and Women's fails... his pre op stuff is all messed up. We might have to be back here at 7 tomorrow. Awesome.
September 1 at 7:36am via mobile

Saw an old man with a bow tie today. Bow ties are cool.
September 1 at 7:53pm

If once was inhumane, I don't want to know what twice is... but its awful. I'm impressed we got here alive, I am so incredibly.exhausted I can barely keep my eyes open. Wow. Not looking forward to next week! Must get lots of sleep this weekend.
September 2 at 6:58am via mobile

I love how much doctors love Charlie. He is such a blast. The op tech loves him right now :) she is pretty awesome though.
September 2 at 9:18am via mobile

It has been one craaaaaaaaaaaaaaazy week!
September 2 at 2:27pm


SURGERY:

At the hospital admitting Charles for brain surgery for another shot at removing his brain tumor. Had hoped we would never be back here. It doesn't seem real. Please keep him in your thoughts and prayers.
Yesterday at 5:35am via mobile

We have said our see you laters... its a long day ahead. They have the OR booked for 9 hours. Dr. Al-Mefty is slow but thorough. Please send Charles all the good wishes you can!
Yesterday at 7:05am via mobile

We have left Charles Horn with the anesthesiologist. At least the day will go by quickly for him! It will be a long day for us! They have the OR booked for 9 hours. Dr. Al-Mefty is slow but thorough. Please send Charles all the good wishes you can!
Yesterday at 7:13am

No news is good news. We were told that the surgery (scheduled for 7:30) didn't begin until 8:50. But I think that's because the doctor is super thorough and slow. We prob won't be seeing him for a few more hours. Keep your happy thoughts coming!
20 hours ago via mobile

Charles Horn is still in the OR. They started closing him up a bit less than an hour ago and said it should take at least an hour. So, hopefully we'll hear from them sooner than later. Really really really really hoping they will give us good news!!!!!!!! Please keep rooting for him!! ♥
18 hours ago

Charles Horn has made it through surgery! They just told us that it was finished at 3:00. We will hopefully hear from Dr. Al-Mefty soon!! YAAAAAYYYY!!!!!!
18 hours ago

Charles Horn IS OK!!!!!!!!!!! Dr. Al-Mefty just came out and told us that he thinks he got all of the tumor, went into the optic canal and got lots out, it was wrapped around everything and it's all away from the left optic nerve and all out and YAAAAAY! It will be a bit before he's awake but OMG YAY!!!!! Keep your fingers crossed!!!! They have to do an MRI to make sure it's all out, but YAY!!!!!!!! Thank you all for everything!!!
18 hours ago


RECOVERY

Charles Horn woke up enough to tell me our code phrase and conked right back out! :) SOOOOOO happy! Will let you know when he's alive enough to tell us he can see! Granted he wont be wearing his glasses for a while but still :) ♥ ♥ ♥ ♥!!!!!!!!!!!!
17 hours ago

Well, he can see fingers!!!!! :-D Charles Horn
17 hours ago

Everything is going to be ok!!!! He said he loved me, he gave Abby a hi-5, told his mom she was an old broad and went back to sleep :) Everything is going to be JUST FINE!!!! Thank God!!!!! ♥ (Charles Horn)
17 hours ago

Poor Charles Horn is in soooooo much pain! It is just breaking my heart!!! And apparently Dr. Al-Mefty has a policy of NOT giving his patients any pain meds! Yes, brains don't feel pain, but the jaw and neck muscles you sliced through sure as hell do!!!! They paged the doctor that's on right now and I'm going to talk to him about asking Dr. Al-Mefty for pain med because it is EXCRUCIATING. Please wish him luck!!! :'(
14 hours ago

Please please please let him stay asleep for a while! Any sleep is a blessing to be relieved of a little of the pain.
14 hours ago via mobile

Well it looks like the codeine has helped some at least! He slept for about a half hour. He woke up needing a drink, so the nurse gave him 2 tylenol that she said she'd get him before he fell asleep. He took those. She asked if she could do anything to make him more comfortable and he said "not unless you can make my head heal right now". ♥ (Charles Horn)
13 hours ago

Taking a quiet moment to be so immensely grateful that my Charlie is ok!!! I have been so terrified!! And, you know what? I will declare publicly that someday I WILL (at least try to) have his babies! Haha. (though I'm at least still going to try to get him to do the pregnancy and labor bit...)
13 hours ago

Charles Horn has slept for about an hour total now! YAAAAY! :) He just woke up for a sec, had me cover him back up and get him some juice. I asked if I could get him anything else, and besides the 'new head' he also asked for a Fiona(our cat) to lay on him :) SO CUTE!!!!
13 hours ago

We've both got in a couple hours of sleep. Spent the last half hour or so chatting. So nice to see him gradually more alert and back to normal. And so lucky he doesn't have any identifiable deficits at this time! Ok back to sleep!
9 hours ago via mobile

Taking him in for a CT scan in a few. Pain is 7/10, but just got some codeine. He is thankful the CT is faster and quieter than MRI.
5 hours ago via mobile

Charles Horn is back from a quick CT scan. He's snuggled back in nicely and got an ice pack for his jaw. Pain is still moderate, just waiting for the codeine to kick in and trying to get some more sleep. He is anxious to get out of here! :) Hoping he can continue sleeping well and that the next day goes well! He said he's ready to try getting up, since he wants to get out of here ASAP. Will keep you updated! He wants you all to know he appreciates everything and thanks for the kind words.
4 hours ago

he's pretty miserable but the pain meds are hopefully starting to kick in. the nurse said she'd leave him alone for a bit, so I'm going to try to get some sleep too :) (Charles Horn)
about an hour ago

Poor boy is in lots of pain. Ate a little scrambled eggs. Or should I say swallowed. Got some more pain meds but they haven't helped yet. He's hot but his temp read OK. His right eye is a bit droopy, but he can open it OK when he tries, he said it's just easier not to, so most of the time he opens just his left eye or mostly the left and a little of the right. The whole right side of his head is in a LOT of pain.... (Charles Horn)
about an hour ago